Neuropathy Resources
Information to change lives!
Neuropathy Resources
Information to change lives!
If you’re reading this, you probably know exactly how it can feel — the intense burning, the pins and needles, that frustrating numbness. The loss of balance, the decreased mobility, the trouble feeling the car's gas and brake pedals, the constant distraction caused by all the pain - all of it leading to the inability to focus on anything else but your Stinging and Burning Feet.
I’ve been living with Peripheral Neuropathy for quite some time now. Since the beginning, I felt like my doctors have focused mainly on the possible causes and lack of treatment options rather than how to deal with the chronic pain. Despite treatment by several doctors over multiple years, I was offered nothing relating to pain management or relief.
I’ve made it my mission to get the pain manageable, and now I am turning my journey into a roadmap for others. I have created this site because nobody should have to navigate this 'nerve-racking' journey alone. I’m here to share the honest truth about what worked for me, what didn't, and the different aids that have helped me reclaim some sanity. Although I am aware of many other resources, I have only included items I have personally used. Everything listed is from first-hand experience. There are no pop-up ads, banners, or other nuisances! If you click on a photo of a device, it will link you to the exact product I use. Any link revenue goes to site maintenance and management. After years of trial-and-error, I have found the things that truly work for me. Hopefully my journey can help shorten yours.
~Bill
Helpful Information to Empower Neuropathy Sufferers
Compression socks are a commonly recommended starting point for sufferers of nerve and circulation issues. I had Peripheral Neuropathy for 3 years before I tried them. Initially I had a noticable reduction in pain but not long after that, the tightness of the socks started aggravating my feet and making them sting worse. While many find them helpful, they didn't work well for me. BUT - they are worth a shot; they are cheap and many report significant relief.
The Cost: * Single Pair: $10 – $20
The negative aspect is that these are a long-term play with no immediate results. I feel like I was in a cycle of daily dosing hoping for internal repair.
The Cost: Can be a significant cost over time depending on the brand you buy. Typically run between $20.00 – $60.00 for a 30-day supply
The Cost: $3 to $6
A custom-ordered mix (Gabapentin, Ketamine, Lidocaine) designed for pain interruption! As a side note, this stuff is great for a stiff neck. In my experience it works well, most times much better than the capaicin.
The cost: no insurance - $80 to $120
Unless you are in the very small number of people that like to go to the gym, pretty much nobody wants to exercise. Managing neuropathy pain through exercise focuses on improving circulation, managing flexibility, and maintaining whatever strength you have.
Here are three of the most effective exercises (I have found):
Swimming - I am fortunate to have a community pool and I find leaning towards or back to the wall kick feet and ensure foot is fully extended.
Walking - This is a tough one depending on your pain level. I have found that walking just a short distance to the end of the street and back is super beneficial. I use a walker and helps with balance.
Gentle Stretching and Range of Motion - Targeted movements like calf stretches and seated toe curls, these are awesome for relief from the tension and cramping. These calf and toe curls have been, by far, the most effective for me! Helps get a little relief.
If you interested in relief from the shoulder, neck, and lower back pain I recommend 100% that you find a nearby Planet Fitness. They have incredible massage equipment. These are in order of preference:
Hydro Massager - awesome spa bed that you lay on and choose any area you want to massage. Pressurised water heated at about 100 degrees massages you through comfortable bed. AWESOME!
Traditional massage chairs - These are the one that use mechanical rollers and compression cuffs on arms and legs. I love these chairs... after using one for a few weeks I got really good at adjusting the massage type and intensity settings, this saves losing 3 or 4 minutes after it starts.
The monthly cost for a black card membership is $25/mo with no contract. I generally go about 19 or 20 times a month because I get so much pain and stress reduction ( I also live about 5 minutes away). Over the past year I hoped to get interested in actually working out or running on a treadmill - not yet. I suspect I will start as soon as I figure out the supplements are working !
The electric foot massager has been a part of my life for several years now. I started with a simple one that cost about $50, and after it gave me some real relief, I invested in a high-end model with heat for a couple hundred dollars. It’s been fantastic—the rolling massage, the vibrations, and the heat all work together so well. Next to the compression boots and ice boots, it’s absolutely at the top of my list for immediate pain relief. They provide a targeted, kneading motion along the soles, which helps improve circulation. They stimulate nerve endings. This will reduce cramping. These massagers have been an awesome instant relief for allot of pain.
Cost: $50 to $350
I’ve turned to a range of tools to manage my pain. One of the most surprising breakthroughs for me has been these ice boots. I just keep them in the freezer and slip them on my feet for about 15 minutes. The cold therapy works!. They’ bring my pain down dramatically—from a 9 all the way to a 5! It’s been an incredible relief that lasts 15-30 minutes and break the pain. These ice boots have been part of my daily routine. This is my top pick for daily pain relief. You will definately want these ASAP.
Cost - $10 to $50
I use these compression boots multiple times a day—sometimes just sitting in my favorite chair, letting them work. A friend with neuropathy recommended them, and honestly, I’m so glad I gave them a shot. They’re a total score on high-pain days, they give me a deep, rhythmic massage that really eases the swelling and dulls that intense pain.
Often categorized as "athletic recovery" gear, these full-leg sleeves are a powerhouse tool for neuropathy. They use a process called intermittent pneumatic compression to mimic the body’s natural muscle pump. The way they work is to reduce intense, deep-tissue pain by flushing out metabolic waste and stimulating significant blood flow through the entire leg and foot.
These are a "must-have" for high-pain days. The rhythmic squeezing provides a unique massage that not only dulls pain but can actually help reduce the swelling (edema) that often makes neuropathy symptoms worse. They offer a level of relief that standard socks or manual massagers simply can’t reach. They are particularly effective because they provide a "passive" treatment—you can sit in your favorite chair, zip them up, and let the machine do the work.
Cost: $75 to $300
One thing is certain, the daily grind of neuropathy can take a heavy toll. The mental toll can be just as heavy as the physical symptoms. When the entire day is spent managing the discomfort, this can lead to a real sense of burnout and isolation. Talking to a counselor or mental health professional isn't about fixing the nerves; it’s about having someone in your corner to help you navigate the psychological weight of a chronic condition. They provide a space to talk about the frustration and overwhelming mental fatigue. I have been able to experience big benefits with techniques for managing all the stuff rattling around in my head.
A large part of this process is about changing your perspective so the pain doesn't define your entire life. This is very often overlooked however it can help as much as any socks, pills, or supplements!
Cost: Insurance co-pay for specialist ; $40 - $80.
Self pay on-line $50 - $80
DRG Stimulator
I was amazed that after several years, my neurologist had never mentioned this option. I went to a pain relief doctor, and right away, they brought up the DRG surgery. After just eight weeks, the trial and implant were done, and my pain dropped dramatically—from a 9 down to a 2. It’s been absolutely incredible.
The DRG stimulation targets specific spinal nerves by placing leads near the dorsal root ganglion to modulate pain signals and prevent pain in lower extremities. It involves a trial phase first, takes a week and you wear the device taped to your back. Assuming you get good pain relief ( 50% relief or more), it is followed by a permanent implant .
The surgery is outpatient and it takes about 2 hours, when you walk out of the building you end up with mostly surgical site pain. Expect to be very limited and restricted by your doctor, can't bend, reach, or pick up anything heavier than a gallon of milk! Amazingly the success rate is about 81% of patients who have experienced at least 50% pain relief at three months;
Cost: in the U.S.: $45,000 to $78,000 without insurance
It seems like allot of money but after 8 weeks post op I had not used anything for pain relief except for a little capsaicin cream. I would estimate my pain hovers around 2-3 most of the time!!! This is from my previous normal of 8-9. It is life changing.
Insurance may cover this surgery (It did for me) it was less than $10K after deductibles and copays. Also there are overseas options. I looked at Germany and it was approx. $14K and India where it costs $9 to $10K. Prior to my surgery the insurance carrier (Cigna) had not approved it, I kept moving forward and decided if it wasn't covered I would just deal with the collections people at the Hospital. I was desperate and when I saw the over 80% success rate I knew I would do whatever I needed to get it done.
TODAY - I have about 75% of my pain gone! Life is good and the pain feels very manageable. You still have neuropathy but you can have a life.
Educational Videos
Living with Peripheral Neuropathy: Tips for a Better Quality of Life
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